Turner Syndrome | 13 Months After Diagnosis

On Tuesday, September 20, Ali saw the endocrinologist for a routine visit. Another inch! She is now 4’11” and though the doctor was ready to recommend continuing the growth hormone shots, Ali said she’d rather not. She’s just done with it. She’s happy that she made it to the height her pediatrician had predicted when she was very young. She has noticed growth in her hands and feet, which is something that can continue to happen even after reaching maximum height. So no more daily growth hormone shots! The estradiol (estrogen replacement) will remain at 0.5 mg every other day for now, which the doctor said could still be working on its own to cause a little continued growth. If it gets her to an even five feet, great! If not, she’s perfectly fine with where she is now.

We went to Children’s at Parker Adventist this morning for a blood draw. Time for an annual check for cholesterol, diabetes, thyroid, and celiac disease. These tests were all normal last year, and we have no reason to believe they’ll turn out any different this time.

I don’t post a lot about this because Turner Syndrome doesn’t define who Ali is. It’s something that exists in her life, but it is not her life. Laughter, kindness, and theater are her life. 😀 I’m very proud of how she has handled all of this knowledge. As flabbergasting as it may be, we know there are far worse things that she could be dealing with. She’s happy, healthy, and active with no abnormal limitations. That is a fortunate thing!

If your interested in my first post about this, which includes a lot of details, you can read it here.

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